Approximately 1.2 million Romanians suffer from a rare disease, rector of the "Carol Davila" University of Medicine and Pharmacy Viorel Jinga said on Friday, stressing the need to "strengthen" screening programmes, especially pediatric ones, to detect these diseases early."In our country, the number of people suffering from a rare disease is about 1.2 million, in a general European context where the total reaches 36 million people affected by a rare disease. It is necessary to focus more on screening programmes, especially pediatric ones, to detect other diseases early. (...) In 80% of cases, the genetic factor triggers a rare disease, but we need to intervene faster with medical solutions, even though today many cases still lack treatment," explained Jinga at a conference held on Rare Disease Day.He pointed out that many rare diseases are severe, chronic, disabling and represent "a heavy burden" for patients, their families, and also economically for the healthcare system."I believe that with rare diseases, we are dealing with a complex equation that has many unknowns, as demonstrated by the large number of cases where the diagnosis is not precise. Most of the time, it takes a long period, sometimes even years, to reach a definite conclusion and precisely define the type of disease for a single patient. Moreover, statistics show that there are up to 8,000 diseases in this category, affecting over 300 million people worldwide, and nine out of ten patients are either undiagnosed or misdiagnosed," Jinga explained.In his opinion, innovative solutions for rare diseases will be discovered in the near future through the development of precision medicine "in tandem" with the advancement of gene therapies.
The 2025 edition of the year’s first major film fest in Europe (and one of the biggest worldwide), the Berlin International Film Festival, took place between 13 and 23 February. My notes come with a bit of delay, as I was also hit by the festival flu that got so many of us sniffling and […]
In the absence of current negative influences, Romania’s economy could have an annual growth potential of 3-4%. Political instability and global geopolitical risks are dampening growth. Economic growth in 2024 was driven by wage increases and accelerating consumption, satisfied however largely through imports. Due to a decline in domestic economic competitiveness, net exports contributed negatively […]
The Bucharest Stock Exchange (BVB) announced on Thursday, March 13, the launch of a new financial education section on the BVB Research Hub platform, dedicated to retail investors. The capital market operator said that it started this project out of the need to increase the level of financial education and promote the investment culture. It […]
The Romanian governing coalition's presidential candidate, Crin Antonescu, announced on Thursday, March 13, that he is launching a podcast designed to popularize his candidacy before the May elections. Antonescu, who is backed by the alliance made up of the Liberals (PNL), Social Democrats (PSD), the Democratic Alliance of Hungarians (UDMR), and the minorities, stated that he will […]
Some 4,500 teachers will learn about rights and responsibilities online, accessibility, inclusion, online well-being, and ethics as part of Incubatorul Civic Digital (ICD - The Civic Digital Incubator), a digital citizenship and democratic culture project implemented by Institutul Intercultural Timișoara, Asociația TechSoup and Școala de Valori. The project, which offers free training, is aimed at […]
Mihaela Murariu, Attorney at Law at Grecu Partners Business Law Firm, analyzes the impact of Artificial Intelligence on personal data protection. Artificial intelligence (AI) has become a ubiquitous technology, used in more and more fields, from marketing and healthcare to recruitment and financial services. However, the widespread use of AI raises numerous questions about privacy […]
