Approximately 1.2 million Romanians suffer from a rare disease, rector of the "Carol Davila" University of Medicine and Pharmacy Viorel Jinga said on Friday, stressing the need to "strengthen" screening programmes, especially pediatric ones, to detect these diseases early."In our country, the number of people suffering from a rare disease is about 1.2 million, in a general European context where the total reaches 36 million people affected by a rare disease. It is necessary to focus more on screening programmes, especially pediatric ones, to detect other diseases early. (...) In 80% of cases, the genetic factor triggers a rare disease, but we need to intervene faster with medical solutions, even though today many cases still lack treatment," explained Jinga at a conference held on Rare Disease Day.He pointed out that many rare diseases are severe, chronic, disabling and represent "a heavy burden" for patients, their families, and also economically for the healthcare system."I believe that with rare diseases, we are dealing with a complex equation that has many unknowns, as demonstrated by the large number of cases where the diagnosis is not precise. Most of the time, it takes a long period, sometimes even years, to reach a definite conclusion and precisely define the type of disease for a single patient. Moreover, statistics show that there are up to 8,000 diseases in this category, affecting over 300 million people worldwide, and nine out of ten patients are either undiagnosed or misdiagnosed," Jinga explained.In his opinion, innovative solutions for rare diseases will be discovered in the near future through the development of precision medicine "in tandem" with the advancement of gene therapies.
From music festivals to cultural happenings and outdoor activities, here are some of the events scheduled to take place in the capital this summer. Tom Jones concert June 26 After a sold-out concert two years ago, Tom Jones returns to Bucharest with an event that is part of the Defy Explanation tour. It will be […]
The "Vară Magică" (Magical Summer) International Festival returns to the Romanian Athenaeum in Bucharest with eight evenings of classical music, taking place from July 2 to August 13 every Wednesday. Now in its 14th edition, the festival continues its artistic direction in 2025 with the theme "Masters and Masterpieces," meant to signal a musical journey […]
The Romanian Chamber of Deputies adopted a draft law establishing the year 2026 as the "Constantin Brâncuși Year” to celebrate the famous sculptor. The law, initiated by former culture minister and Social Democratic deputy Natalia Intotero, passed with a large majority, with 275 votes in favor and one vote against. Next year also marks the […]
Romanian president Nicușor Dan met with UK prime minister Keir Starmer on Wednesday morning, June 25, on the sidelines of the NATO summit in The Hague. The meeting brought together Romania’s full official delegation, including presidential security advisor Cristian Diaconescu, newly appointed foreign minister Oana Țoiu, defence minister Ionuț Moșteanu, and Romania’s permanent representative to […]
EUROPAfest 2025 will bring a special jazz experience to Bucharest this summer, transforming the Royal Palace into a stage for international artists between July 4 and 13. The festival opens with a series of concerts that highlight jazz traditions from around the world, with a particular focus on artists from Japan and Norway. The Opening […]
The publicly-traded Romanian real estate company Meta Estate Trust, ticker MET, announced a new investment worth EUR 1.52 million in four villas within the Radisson Blu Grand Mountain Resort Brașov, the first 5-star mountain villa resort in Romania. The premium resort is currently under development, and the four villas representing Meta Estate Trust’s investment are […]
