Approximately 1.2 million Romanians suffer from a rare disease, rector of the "Carol Davila" University of Medicine and Pharmacy Viorel Jinga said on Friday, stressing the need to "strengthen" screening programmes, especially pediatric ones, to detect these diseases early."In our country, the number of people suffering from a rare disease is about 1.2 million, in a general European context where the total reaches 36 million people affected by a rare disease. It is necessary to focus more on screening programmes, especially pediatric ones, to detect other diseases early. (...) In 80% of cases, the genetic factor triggers a rare disease, but we need to intervene faster with medical solutions, even though today many cases still lack treatment," explained Jinga at a conference held on Rare Disease Day.He pointed out that many rare diseases are severe, chronic, disabling and represent "a heavy burden" for patients, their families, and also economically for the healthcare system."I believe that with rare diseases, we are dealing with a complex equation that has many unknowns, as demonstrated by the large number of cases where the diagnosis is not precise. Most of the time, it takes a long period, sometimes even years, to reach a definite conclusion and precisely define the type of disease for a single patient. Moreover, statistics show that there are up to 8,000 diseases in this category, affecting over 300 million people worldwide, and nine out of ten patients are either undiagnosed or misdiagnosed," Jinga explained.In his opinion, innovative solutions for rare diseases will be discovered in the near future through the development of precision medicine "in tandem" with the advancement of gene therapies.
Participation in cultural education activities continues to be limited, with the main barriers being difficult access, insufficient knowledge, and cost, the recently released Cultural Consumption Barometer 2024 shows. The report showed that many Romanians still associate culture with entertainment rather than with personal development or furthering their knowledge. The need for relaxation dominates in cultural […]
Roughly 84% of Romanians say that the pace of the state’s digitalization is slow or very slow, according to an Edge Institute & AtlasIntel study presented at the Digital Governance Summit 2025, which took place on Tuesday, November 25, at the presidential palace in Bucharest. The survey aims to capture the way citizens relate to […]
Romania’s Superior Council of Magistracy (CSM) issued a negative opinion on the new bill regarding magistrates’ pensions. The move is only the latest development concerning a heated issue that led to tensions between the executive and the judiciary branch. CSM’s opinion is consultative, and the government led by Ilie Bolojan can still take responsibility for […]
Romania took the presidency of the Central European Initiative (or CEI) on Wednesday, November 26, according to a press release from the Ministry of Foreign Affairs (MAE). The organization is a regional intergovernmental forum established in 1989, following the fall of the Berlin Wall. It gathers 17 Member States in Central, Eastern, and South-Eastern Europe […]
Trade between Romania and Poland continues to grow, with annual bilateral exchanges in goods now valued at more than EUR 12 billion, according to figures presented by the Polish-Romanian Bilateral Chamber of Commerce and Industry (PRBCC). The data was released during a reception in Bucharest marking Poland’s Independence Day and Romania’s National Day. Polish investments […]
As Romania moves closer to implementing the EU Pay Transparency Directive, local employers are preparing for one of the most consequential shifts in workplace regulation in over a decade. The directive, set for transposition by June 2026, introduces strict new rules on salary disclosure, pay reporting, and equal-pay verification, aiming to close persistent gender gaps […]
