Approximately 1.2 million Romanians suffer from a rare disease, rector of the "Carol Davila" University of Medicine and Pharmacy Viorel Jinga said on Friday, stressing the need to "strengthen" screening programmes, especially pediatric ones, to detect these diseases early."In our country, the number of people suffering from a rare disease is about 1.2 million, in a general European context where the total reaches 36 million people affected by a rare disease. It is necessary to focus more on screening programmes, especially pediatric ones, to detect other diseases early. (...) In 80% of cases, the genetic factor triggers a rare disease, but we need to intervene faster with medical solutions, even though today many cases still lack treatment," explained Jinga at a conference held on Rare Disease Day.He pointed out that many rare diseases are severe, chronic, disabling and represent "a heavy burden" for patients, their families, and also economically for the healthcare system."I believe that with rare diseases, we are dealing with a complex equation that has many unknowns, as demonstrated by the large number of cases where the diagnosis is not precise. Most of the time, it takes a long period, sometimes even years, to reach a definite conclusion and precisely define the type of disease for a single patient. Moreover, statistics show that there are up to 8,000 diseases in this category, affecting over 300 million people worldwide, and nine out of ten patients are either undiagnosed or misdiagnosed," Jinga explained.In his opinion, innovative solutions for rare diseases will be discovered in the near future through the development of precision medicine "in tandem" with the advancement of gene therapies.
On November 20th, 2025, the Bucharest Stock Exchange (BVB) celebrated 30 years since its reopening, organizing a series of anniversary events along with various representatives of the Romanian capital market. Three decades ago, the first transactions took place on the BVB, and the Romanian investment landscape as we know it today began to take shape. […]
With the holidays just around the corner, we’ve created the new Collection of Boromir Infused Cozonac with natural vanilla syrup and pistachio. Unique, slightly moist, and richly filled, our latest assortments of Boromir Infused Cozonac make every festive moment with your loved ones even more special. Each bite melts in your mouth, bringing warmth, comfort, […]
Romanian airline AnimaWings announced on Friday, November 21, that starting in 2026, it will operate five new air routes from Timișoara International Airport, serving holiday destinations in Italy and Greece. The new connections include Athens (ATH), Olbia – Sardinia (OLB), Kefalonia (EFL), Thessaloniki (SKG), and Kavala (KVA). “We want Timișoara to become a reference point […]
President Nicușor Dan promulgated a law establishing October 29 as Queen Marie Day, following the bill’s adoption by the Chamber of Deputies on October 28, news agency Agerpres reported. The new law designates the date as a day dedicated to commemorating the life and historical contribution of Queen Marie of Romania. On October 29, public […]
Horaţiu Potra, the mercenary leader with alleged ties to Russia who previously fled Romania, was placed under preventive arrest for 30 days after his extradition from Dubai. He is investigated for attempted actions against the constitutional order, violation of the regime of weapons and ammunition, and violation of the regime of explosive materials. The same preventive […]
Nicușor Dan is the political figure in whom Bucharest residents have the most trust, according to a survey by INSCOP Research. The former mayor, now head of state, is followed by prime minister Ilie Bolojan. More precisely, 44.2% of the total sample state that they have quite a lot or very much trust in Nicușor […]
