Ooni Koda
  1. Home
  2. /
  3. Newsfeed
  4. /
  5. Healthcare: About 1.2 million Romanians suffer from a...

Healthcare: About 1.2 million Romanians suffer from a rare disease, screening needs to be strengthened

April 2, 2025

 Approximately 1.2 million Romanians suffer from a rare disease, rector of the "Carol Davila" University of Medicine and Pharmacy Viorel Jinga said on Friday, stressing the need to "strengthen" screening programmes, especially pediatric ones, to detect these diseases early."In our country, the number of people suffering from a rare disease is about 1.2 million, in a general European context where the total reaches 36 million people affected by a rare disease. It is necessary to focus more on screening programmes, especially pediatric ones, to detect other diseases early. (...) In 80% of cases, the genetic factor triggers a rare disease, but we need to intervene faster with medical solutions, even though today many cases still lack treatment," explained Jinga at a conference held on Rare Disease Day.He pointed out that many rare diseases are severe, chronic, disabling and represent "a heavy burden" for patients, their families, and also economically for the healthcare system."I believe that with rare diseases, we are dealing with a complex equation that has many unknowns, as demonstrated by the large number of cases where the diagnosis is not precise. Most of the time, it takes a long period, sometimes even years, to reach a definite conclusion and precisely define the type of disease for a single patient. Moreover, statistics show that there are up to 8,000 diseases in this category, affecting over 300 million people worldwide, and nine out of ten patients are either undiagnosed or misdiagnosed," Jinga explained.In his opinion, innovative solutions for rare diseases will be discovered in the near future through the development of precision medicine "in tandem" with the advancement of gene therapies.  

Read in full - click here
Lawyer of Romanian far-right figure Călin Georgescu reportedly investigated for sexual assault of a minor

Bogdan Mircea Petre, one of the lawyers who represented far-right politician Călin Georgescu, is allegedly involved in a case of sexual assault after he was caught in the act during a meeting with a minor, according to Digi24. The “sting operation” was organized by Alex Costandachi, known in the public space as Justițiarul...

Majority of Romanian CFOs say they now need constantly updated financial forecasts

Roughly 8 out of 10 chief financial officers, or CFOs, from Romania’s largest companies say they now need constantly updated financial forecasts, unlike previous years when the focus was primarily on financial results, budgeting, and accounting, according to Inulta, a company specializing in Corporate and Enterprise Performance Management. The forecasts come to offer a degree […]

Romanian authorities seize assets of mercenary Horațiu Potra in tax evasion case

Romanian prosecutors have placed a precautionary seizure on the accounts and assets of the mercenary Horațiu Potra, in a case of tax evasion, embezzlement, and money laundering. The measure targets over RON 24 million, nearly 30 kilograms of gold, a property in Bucharest, and 11 properties and apartments in Sibiu.  According to investigators cited by […]

Romanian car brand Dacia makes impressive entry in European SUV market with Bigster model

The first sales figures from two of the largest European markets, France and Germany, both major markets for the Dacia brand, show that the debut of the carmaker's largest SUV, the Bigster, has been impressive.  June data on car registrations in Germany show that the Dacia Bigster managed to sell 1,227 units in its second […]

MerchantPro Compass H1 2025: eCommerce holds steady under pressure, with +2% growth and a shift toward efficiency

After a 2024 marked by adaptation and consolidation, Romanian eCommerce entered 2025 with a more restrained dynamic. According to MerchantPro Compass, the biannual analysis conducted by MerchantPro, a SaaS eCommerce platform supporting over 2,000 active online stores—the first half of this year confirms a paradigm shift: it’s no longer about how much you sell, but […]

TIFF Unlimited Caravan sets off across Romania with outdoor screenings and premieres

The TIFF Unlimited Caravan is hitting the road for the 16th consecutive year, bringing a diverse selection of Romanian and international films to audiences across the country. From July to September 2025, the traveling film series will stop in ten towns and cities, offering outdoor and indoor screenings of comedies, love stories, and family-friendly films. […]