Approximately 1.2 million Romanians suffer from a rare disease, rector of the "Carol Davila" University of Medicine and Pharmacy Viorel Jinga said on Friday, stressing the need to "strengthen" screening programmes, especially pediatric ones, to detect these diseases early."In our country, the number of people suffering from a rare disease is about 1.2 million, in a general European context where the total reaches 36 million people affected by a rare disease. It is necessary to focus more on screening programmes, especially pediatric ones, to detect other diseases early. (...) In 80% of cases, the genetic factor triggers a rare disease, but we need to intervene faster with medical solutions, even though today many cases still lack treatment," explained Jinga at a conference held on Rare Disease Day.He pointed out that many rare diseases are severe, chronic, disabling and represent "a heavy burden" for patients, their families, and also economically for the healthcare system."I believe that with rare diseases, we are dealing with a complex equation that has many unknowns, as demonstrated by the large number of cases where the diagnosis is not precise. Most of the time, it takes a long period, sometimes even years, to reach a definite conclusion and precisely define the type of disease for a single patient. Moreover, statistics show that there are up to 8,000 diseases in this category, affecting over 300 million people worldwide, and nine out of ten patients are either undiagnosed or misdiagnosed," Jinga explained.In his opinion, innovative solutions for rare diseases will be discovered in the near future through the development of precision medicine "in tandem" with the advancement of gene therapies.
Romanian president Nicușor Dan met with UK prime minister Keir Starmer on Wednesday morning, June 25, on the sidelines of the NATO summit in The Hague. The meeting brought together Romania’s full official delegation, including presidential security advisor Cristian Diaconescu, newly appointed foreign minister Oana Țoiu, defence minister Ionuț Moșteanu, and Romania’s permanent representative to […]
EUROPAfest 2025 will bring a special jazz experience to Bucharest this summer, transforming the Royal Palace into a stage for international artists between July 4 and 13. The festival opens with a series of concerts that highlight jazz traditions from around the world, with a particular focus on artists from Japan and Norway. The Opening […]
The publicly-traded Romanian real estate company Meta Estate Trust, ticker MET, announced a new investment worth EUR 1.52 million in four villas within the Radisson Blu Grand Mountain Resort Brașov, the first 5-star mountain villa resort in Romania. The premium resort is currently under development, and the four villas representing Meta Estate Trust’s investment are […]
Passenger car registrations in Romania recorded the sharpest year-on-year decline in Europe in May, according to data published Wednesday, June 25, by the European Automobile Manufacturers Association, or ACEA, which represents the 16 major car manufacturers in Europe. Regionally, however, the situation is different, as the auto market in Europe returned...
Maidan, a company active in event catering, industrial catering and the development of its own gastronomic products, ended the year 2024 with a turnover of EUR 3.2 million, up 30% compared to the previous year. This evolution comes in the context of an unstable economic environment, but also of significant internal transformations. Investments for the […]
Danish renewable energy developer Eurowind Energy has announced a EUR 174.8 million investment to develop its largest solar park in Romania, located in Vișina, Dâmbovița county. The new solar facility will have an installed capacity of 220 MW, making it one of the largest solar projects in the country. The facility is expected to generate around […]
