Approximately 1.2 million Romanians suffer from a rare disease, rector of the "Carol Davila" University of Medicine and Pharmacy Viorel Jinga said on Friday, stressing the need to "strengthen" screening programmes, especially pediatric ones, to detect these diseases early."In our country, the number of people suffering from a rare disease is about 1.2 million, in a general European context where the total reaches 36 million people affected by a rare disease. It is necessary to focus more on screening programmes, especially pediatric ones, to detect other diseases early. (...) In 80% of cases, the genetic factor triggers a rare disease, but we need to intervene faster with medical solutions, even though today many cases still lack treatment," explained Jinga at a conference held on Rare Disease Day.He pointed out that many rare diseases are severe, chronic, disabling and represent "a heavy burden" for patients, their families, and also economically for the healthcare system."I believe that with rare diseases, we are dealing with a complex equation that has many unknowns, as demonstrated by the large number of cases where the diagnosis is not precise. Most of the time, it takes a long period, sometimes even years, to reach a definite conclusion and precisely define the type of disease for a single patient. Moreover, statistics show that there are up to 8,000 diseases in this category, affecting over 300 million people worldwide, and nine out of ten patients are either undiagnosed or misdiagnosed," Jinga explained.In his opinion, innovative solutions for rare diseases will be discovered in the near future through the development of precision medicine "in tandem" with the advancement of gene therapies.
The Romanian Senate adopted a draft law that automatically extends provisional protection orders and increases penalties for violating them on Monday, October 27. A total of 120 votes were recorded in favor. The bill extends provisional protection until the resolution in the first instance of the request for it, amending Law no. 217/2003 on preventing […]
BraveX Aero, a Romanian manufacturer of fixed-wing, long-range drones, announced on Tuesday, October 28, the signing of a strategic partnership with Germany’s Uniq Things UG, a technology company specializing in autonomous coordination and software for drone swarms. The technology allows for the simultaneous deployment of multiple drones, contributing to increased information and response capabilities for […]
The medieval citadel of Sighişoara, in central Romania, will host the first edition of the “Halloween in the Citadel” festival. The event will take place this weekend, between October 31 and November 2. The entire city center will be decorated in the spirit of Halloween with the ocassion. The towers and historic houses inside the […]
Romania ranks among the European Union countries with the highest share of people living in severely inadequate housing, according to new data compiled by Monitorul Social, a project of the Friedrich-Ebert-Stiftung Romania, based on Eurostat figures for 2023–2024. The report showed that 9.6% of Romania’s population lives in conditions classified as “severe housing deprivation,” meaning...
Haier Tech Europe is selling its manufacturing plant near Ploiești, in Romania’s Prahova county, as part of a broader restructuring of its European production network. The company has appointed real estate consultancy Colliers as the exclusive consultant for the transaction. The decision follows Haier’s recent strategic review, which led to the discontinuation of operations at […]
Romanian agricultural company Agroserv Măriuța, owner of the Lăptăria cu Caimac brand, announced the launch of a private placement for a new corporate bond issue with a value of up to EUR 3 million on Tuesday, October 28. Denominated in euros, the bonds will have a nominal value of EUR 100 each, a fixed annual […]
