Approximately 1.2 million Romanians suffer from a rare disease, rector of the "Carol Davila" University of Medicine and Pharmacy Viorel Jinga said on Friday, stressing the need to "strengthen" screening programmes, especially pediatric ones, to detect these diseases early."In our country, the number of people suffering from a rare disease is about 1.2 million, in a general European context where the total reaches 36 million people affected by a rare disease. It is necessary to focus more on screening programmes, especially pediatric ones, to detect other diseases early. (...) In 80% of cases, the genetic factor triggers a rare disease, but we need to intervene faster with medical solutions, even though today many cases still lack treatment," explained Jinga at a conference held on Rare Disease Day.He pointed out that many rare diseases are severe, chronic, disabling and represent "a heavy burden" for patients, their families, and also economically for the healthcare system."I believe that with rare diseases, we are dealing with a complex equation that has many unknowns, as demonstrated by the large number of cases where the diagnosis is not precise. Most of the time, it takes a long period, sometimes even years, to reach a definite conclusion and precisely define the type of disease for a single patient. Moreover, statistics show that there are up to 8,000 diseases in this category, affecting over 300 million people worldwide, and nine out of ten patients are either undiagnosed or misdiagnosed," Jinga explained.In his opinion, innovative solutions for rare diseases will be discovered in the near future through the development of precision medicine "in tandem" with the advancement of gene therapies.
The third breast milk bank in Romania has opened at the Sibiu County Hospital, following a RON 13.5 million (about EUR 2.7 million) investment aimed at modernizing the hospital’s neonatology department. The modernization project, financed through the National Recovery and Resilience Plan, included the replacement of old equipment, a 20% increase in the number of […]
President Nicuşor Dan stated on Wednesday, July 30, in a press conference that the current system, which allows magistrates to retire under the age of 50 with a pension higher than their salary, is absurd. He also criticized the Superior Council of Magistracy, or CSM, for the current “disorderly” state of the Romanian justice system. […]
Forty Romanian firefighters and eight fire trucks left for Greece on Wednesday, July 30, to participate in firefighting missions, the General Inspectorate for Emergency Situations said. Between August 1 and September 15, Romania will take part in the Directorate-General for European Civil Protection and Humanitarian Aid Operations (DG ECHO) program aiming to support the Greek […]
Integrated facility and property management services provider Nazca has opened its first office outside Italy, its domestic market, in Bucharest. Nazca expects revenues of over EUR 1 million next year in Romania, and in the next 3 years, the growth plan aims to reach EUR 10 million, with target sectors being office buildings, retail, industrial […]
The 19th edition of TIFF Sibiu, one of the local editions of the Transilvania International Film Festival (TIFF), the largest film event in the county, will present a program of international films and the latest productions by Romanian fillmakers, who will attend the event. The festival takes place between August 7 and August 10, with […]
Moldovan carrier Flyone will add a route between Bucharest and Munich starting in October. The flights to Munich will be operated on Mondays, Wednesdays, and Fridays. This adds to the flights it has connecting the Romanian capital to Tel Aviv, Brussels, and Verona. With these routes, the airline is responding to the constant demand from […]
