Approximately 1.2 million Romanians suffer from a rare disease, rector of the "Carol Davila" University of Medicine and Pharmacy Viorel Jinga said on Friday, stressing the need to "strengthen" screening programmes, especially pediatric ones, to detect these diseases early."In our country, the number of people suffering from a rare disease is about 1.2 million, in a general European context where the total reaches 36 million people affected by a rare disease. It is necessary to focus more on screening programmes, especially pediatric ones, to detect other diseases early. (...) In 80% of cases, the genetic factor triggers a rare disease, but we need to intervene faster with medical solutions, even though today many cases still lack treatment," explained Jinga at a conference held on Rare Disease Day.He pointed out that many rare diseases are severe, chronic, disabling and represent "a heavy burden" for patients, their families, and also economically for the healthcare system."I believe that with rare diseases, we are dealing with a complex equation that has many unknowns, as demonstrated by the large number of cases where the diagnosis is not precise. Most of the time, it takes a long period, sometimes even years, to reach a definite conclusion and precisely define the type of disease for a single patient. Moreover, statistics show that there are up to 8,000 diseases in this category, affecting over 300 million people worldwide, and nine out of ten patients are either undiagnosed or misdiagnosed," Jinga explained.In his opinion, innovative solutions for rare diseases will be discovered in the near future through the development of precision medicine "in tandem" with the advancement of gene therapies.
The European Commission has approved a payment of EUR 1.27 billion to Romania as part of the National Recovery and Resilience Plan (PNRR) funding worth some EUR 28 billion in total. The rest of the scheduled payment, totaling EUR 870 million, was suspended. Romania’s European funds minister, Marcel Boloș, announced that three objectives included in […]
The tech startups YellowGrid, WiseWatts and Procesio won CleanTech Corporate Hackathon 2025, the first event dedicated to innovators, startups and scaleups creating AI-based technologies and solutions for sustainable energy in South East Europe. YellowGrid, the team that won first place and the EUR 5,000 prize, is composed of Cătălin Stăncel, Sergiu Mureșan, Andrei Antohie and […]
Romanians' trust in the EU is well above the European average, but they occasionally show different priorities compared to those of most Europeans, according to the most recent Eurobarometer survey. The measurement, conducted in the winter and spring of 2025, shows an overall increase in European citizens’ trust in the EU, especially in the areas […]
Romania has dropped four positions in the global Startup Ecosystem 2025 report by StartupBlink. It is now ranked 48th worldwide, and has lost ground in Eastern Europe, where it dropped from 8th to 9th place, after Ukraine advanced one position and Greece two positions, surpassing Romania globally. However, Romania is now 16th in the global AI top […]
The Nufărul geothermal station in Oradea, developed through a European project worth EUR 25 million, was officially inaugurated on Thursday, May 29. The station is the first of its kind in Romania, and builders had to drill approximately 2,800 meters for water. “All extracted water comes to the geothermal station on Iancu de Hunedoara Street, […]
CTP, a leading developer, owner, and operator of industrial and logistics properties, has extended its collaboration with HelpShip, a major e-fulfillment and logistics provider within the euShipments.com group, increasing HelpShip’s leased space to 20,000 sqm at CTPark Oradea Cargo Terminal. The expanded facility will serve as the company’s main fulfilment center. With HelpShip’s growth from […]
